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YNOTT hopes to increase organ donation awareness
Originally posted 2/27/2008

Edward D. Drake II was lying in a hospital bed when he silently sent up a question: ''Why me?''
He said he received a reply: ''Why not you?''
Edward, 22, his friend Lance Self, 21, and other young people are trying to turn Edward’s kidney failure into something positive. They’ve started YNOTT, a Columbus-based foundation whose name is an acronym for Youth Needing Organ and Tissue Transplants.

''I’m basically just going around, trying to inspire youth, sharing my story, and trying to get youth to enjoy life and truly be thankful for what they have received and to do the proper things to their body,'' Edward said. ''I want to be a positive impact on the community.''
''The No. 1 thing right now is to raise awareness,'' said Lance, who like Edward is a native of Toledo. ''We want to save more lives in the Ohio community – just save more lives.''

YNOTT was certified as a non-profit foundation in August 2007 by the Ohio Secretary of State’s office. Incorporators include the two young men’s friends, Asante White and Jontae Essex.
Its purpose is increase awareness among young people about becoming organ and tissue donors, providing emotional and financial support to transplant recipients, and educating individuals on healthy habits and transplant procedures.

''Our vision, and our goal, is to deliver hope and assistance to youth in need; to decrease the total of deaths yearly of individuals in need of organ and tissue transplants nationwide, caused by lack of donors, and to help prevent future organ failures through encouraging diagnosis and by educating people on healthy lifestyles,'' YNOTT’s mission statement reads.


Edward said he was 20 and planning to play for the Eastern Michigan University football team when his kidney failure was discovered. He is undergoing dialysis while he waits for a possible transplant, he said. ''All of a sudden my life changed overnight,'' Edward said about that diagnosis. ''In a matter of five hours I went from training for the upcoming football season to being in a hospital bed with tubes everywhere.''

He said he silently put the question to his Maker from the hospital bed. 'Then something came to me one night – ‘Why not you?’'' he said. The foundation’s web site poses the same question: www.ynottyou@com.

Edward and Lance recently visited Toledo Children’s Hospital and St. Vincent’s to give teddy bears and toys to children with serious illnesses. Lance also spoke recently to students at Springfield High School about the importance of becoming organ donors. Springfield teacher George Clark said the audience was perfect for Lance’s message since many of the students will be getting driver’s licenses and can designate that they wish to be organ donors.

''It was very informative,'' Mr. Clark said about the presentation. ''He made a great point by saying most people talk about AIDS or cancer, but that organ donation is something that’s never really discussed. It was a wake-up call for a lot of kids.''
YNOTT’s presentations inform listeners that an average of 18 men, women and children die in the United States every day while awaiting organ transplants. As of November of last year, there were 98,036 Americans on the organ transplant waiting list, with most – and with Edward among the 73,980 – hoping for a kidney transplant.

''I sit in dialysis for four hours three days a week,'' Edward said. ''I sit there getting kidney treatment and hoping to get a kidney transplant one day.''My purpose in life now is to save others and get youth to take better care of their bodies,'' he added. ''And to realize that it can happen to them.''

Edward, now living in Columbus, came home to Toledo for a while to ''deal with that whole situation'' of knowing one of his kidneys was failing. He visited the University of Toledo campus and met Lance, who is a student at UT. YNOTT grew out of the friendship they struck up.

''It’s my blessing to have met him,'' Edward said. ''It’s been something special.''

Lance said he and Edward met through a third person at UT, a friend to both of them. About a year and a half from earning his bachelor’s, Lance said he decided to devote time and energy to his new friend’s cause.

''What drew me into it was, when I saw his face and his expression, it was true to his heart,'' Lance said. ''And if it’s true to your heart, it’s got to be led by God.''

The YNOTT leaders recently addressed college students in Kalamazoo, Mich., distributing organ donor cards and urging them to sign up. They discussed the importance of a donor, in death, saving another’s life.

Most important to their mission, the young men said, is increasing awareness of the need for more organ and tissue donations. Secondarily, they said, is raising funds to increase the foundation’s impact. They invite people to visit their website or to mail them at: YNOTT Foundation, 1799 W. 5th Ave., PMB116, Columbus, OH 43212.

''You can contribute to our foundation, contribute resources; contribute, of course, financially, through your time and by just being basically positive and becoming an organ donor,'' Edward said when asked what he wanted to ask the people of Toledo. ''First and foremost, become an organ donor,'' he added.
Lance said, ''I personally want youth to feel what we’re going through, just to feel the impact we’re trying to have on the community and how important this dire need is.''

YNOTT is planning ''organ awareness tours'' and plans to have a major event in Toledo in May.
Edward said he’d like to make his foundation grow into a force that has impact across the nation.

''Come on out here and help us make this thing grow,'' he said. ''Why not? Why not you?''

Edward said his relatives either have kidneys that don’t match or don’t want to donate. Lance said he is undergoing tests to see if one of his kidneys will match his friend’s.
'
'Hopefully, God will allow me to do it,'' Lance said. ''We’ll see what happens from that [testing]. It could be a miracle ending.''
Edward, meanwhile, said his own health isn’t as important as trying to help others to avoid getting into situation he is in, in need of a kidney.

''It’s a unique story,'' Edward said. ''And I truly think this story was made to inspire people to realize that you don’t know why things happen the way they happen, but it happens that way, which was meant to be.

''I never thought that as a little boy I would be able to speak to people and touch their hearts,'' the young man said. ''It’s all about helping other and I believe that through helping others, I will help myself.''

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Persons interested in the foundation can visit its website or call either 614-341-7000 or 419-932-4505.

 

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